Monday, May 20, 2013
The struggle.
Sunday, May 19, 2013
Surreal
Friday, May 17, 2013
Invisible illness questions
3. But I had symptoms since: I can remember having symptoms of diabetes for most my sophomore year. I would get kidney infections a lot and that's what ultimately led to being tested. I've struggled with migraines for a couple of years but they got worse after a seizure in July. I've struggled with having anxiety attacks my entire life, but they haven't been as intense as the ones in the past year or so. The depression is new. This started in the past year or so, around same time as seizure. It's clinical, and there is something in my hormone levels that causes it and makes everything off.
4. The biggest adjustment I’ve had to make is: not being hard on myself and blaming myself for the parts I can't control. I also missed a lot of school which was difficult.
5. Most people assume: that I am a happy, upbeat person because of thow I act when I'm around others. I am that person but that is only one layer. I do hurt, I do cry and I do have hard times when dealing with my illnesses. I am human and have a full range of emotions. I think living with any chronic illness comes with highs and lows, days when you are strong, and days when you need strength.
6. The hardest part about mornings are: just getting moving at first. Some days are really good and I don't have any problems! But, some days I wake up with a pounding, crippling headache and I would do just about anything to crawl back under my covers. Sometimes I have a hard night of anxiety attacks and then wake up the next day exhausted and depressed. The depression is the worst when it rains, and rain causes headaches and migraines as well, so it's safe to say rainy days are the hardest.
7. My favorite medical TV show is: Grey's Anatomy and HOUSE. I like HOUSE because of the mysteries and how it wasn't like a lot of other medical shows, and I like Grey's because of the characters and story lines.
8. A gadget I couldn’t live without is: my glucose meter to check my blood sugar.
9. The hardest part about nights are: waking up with migraines or waking up with a panic attack in the middle of the night.
10. Each day I take: 3 pills and various vitamins for a few different vitamin deficiencies I have
11. Regarding alternative treatments I: I believe that anything that helps you feel good and doesn’t hurt yourself or others is ok. I think exercise helps with anxiety, depression, and blood sugar levels. I also think that sleep can completely cure a migraine.
12. If I had to choose between an invisible illness or visible I would choose: I would choose to have an invisible illness. I don't like for people to feel sorry for me, and I don't like to ask for help, so honestly an invisible illness is easier to "hide." Maybe not the best way to look at it, but it's honest. The downside to any invisible illness is that people can have trouble understanding what they can not physically see and think you're faking when you're really struggling.
13. Regarding working and career: When your passion becomes your purpose there is nothing you can’t do. We might think we choose our work, or career but I do believe that god knows what is best for us and finds a way to put us in that path. With what I want to do one day, I'm thankful my illnesses do not hinder me from doing what I love.
14. People would be surprised to know: That I cry ALL the time! A lot if people have puffy eyes and faces after crying for five minutes. I can cry for hours, dry my eyes, wipe my nose, and then go to school or the store or whatever and put on my smile.
15. The hardest thing to accept about my new reality has been: telling others, accepting that I will have bad days, facing challenges rather than running from them, and trying to keep it looking like I have it all together. I'm staying home for my first year of college against my original plans, mostly because of different medications and what not we're trying. That was hard. I'm at peace with it now, but it took a long time to get there.
16. Something I never thought I could do with my illness that I did was: live a normal life with diabetes. I thought it was the end of the world when I was diagnosed, and now it's part of who I am.
17. The commercials about my illness:
Diabetes: there are a lot about diabetes awareness which are nice, and a lot about different meters you can buy to monitor blood sugar.
Migraines: none come to mind
Anxiety: none come to mind
Depression: lots! It's kind of downplayed though which is kind of misleading to others. "You're depressed? Pop some medicine, smile, move on! You're fine" is a message I think a lot of depression commercials send, but it isn't that easy unfortunately.
18. Something I really miss doing since I was diagnosed is: having a good attendance record at school.
19. It was really hard to have to give up: sugar at first, with the diabetes. That's easier now though, and I'm living a healthier lifestyle than I was at one point in my life.
20. A new hobby I have taken up since my diagnosis is: I actually haven’t taken up any exciting new hobbies that I can think of right now. I would LOVE to learn more about photography and art, or reading more than I get to have time for.
21. If I could have one day of feeling normal again I would: I would just try to cram as much stuff into a good day as possible. Spend it with family and friends, relax, have fun, not worry.
22. My illness has taught me: Who my real friends and family are. The people who support you every day, for better or for worse…. in sickness and in health those are the people who truly love you. That god is going to let me bend but not allow me to break. That God is going to throw a lot at me at once to see if I will depend on him. That I am stronger than I think I am. That I don't give up, even when I want to more than anything.
23. Want to know a secret? One thing people say that gets under my skin is: I hate when people say depression or anxiety isn't real or people just say they have it to get attention. Type in anxiety disorders, or clinical depression into google and see how many thousands of articles show up talking about if. It's real. I also hate when people say stuff like "oh, you have diabetes? You should eat better and excersise more." Gee, thank you. If only someone had told me that when they told me I had diabetes. I'm not stupid, I know those things help. It's not just diet and excersise though, and there are factors I can't control. It also makes me roll my eyes when people say "I have a migraine" on Facebook or twitter or something. If it was a migraine you'd be throwing up, wanting total silence, in a dark room. You would not be staring at a computer screen or texting your friends. Trust me.
24. But I love it when people: are understanding and nonjudgmental, allowing me to cope with pain in my own ways.
25. My favorite motto, scripture, quote that gets me through tough times is: God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.
26. When someone is diagnosed I’d like to tell them: It will be hard, but it will be ok. YOU ARE NOT ALONE
27. Something that has surprised me about living with an illness is: I can still do normall, every day things
28. The nicest thing someone did for me when I wasn’t feeling well was: My parents love is endless and has no boundaries. They do nice things constantly, too many to mention or count. But knowing I can count on them is the nicest feeling in the world.
29. I’m involved with Invisible Illness Weekbecause: If all of us do our part, write a blog post, re tweet this post, share on facebook, pass on info.. whatever. Each step is a step closer to awareness, understanding and acceptance. It is the easiest thing we can do, but collectively will make a difference.
This isn't invisible illness awareness week, but I can still show my support and share a piece of my story.
30. The fact that you read this list makes me feel: like others may understand a little more now, and if you read this without judging me, I feel loved.